Are Iranian patients willing to receive clinical information and participate in treatment decisions?
Abstract
This study examined the extent to which patients are willing to receive medical information about their health status and participate in medical decision-making. It also assessed the patients' satisfaction with the amount of information provided to them and their involvement in treatment decisions. Additionally, the study evaluated differences between patients' and their companions' perspectives on the necessity of informing patients about their health status. This cross-sectional study included 110 eligible patients, who were interviewed using a developed and validated questionnaire.The results revealed that Iranian patients exhibited a relatively high tendency to seek information and participate in medical decision-making. This tendency was more pronounced among women, married individuals, and patients hospitalized in private hospitals. Additionally, the companions' inclination to inform patients about their clinical condition was lower than the patients' own desire to be informed. The study concluded that doctors should create an appropriate environment for informing patients and facilitating their active participation in decisions.Furthermore, the decision regarding the extent of information provided to patients should be left to the patients themselves.
O'Connor AM, Stacey D. Should patient decision aids (PtDAs) be introduced in the health care system? 2005.
Maārifī GR, Ḥasanniyā A. The “Autonomy Principle” in Islamic Medical Ethics, with an Emphasis on the Qur'ānic Views. Journal of Contemporary Islamic Studies. 2020;2(1):39-51.
Pelto-Piri V, Engström K, Engström I. Paternalism, autonomy and reciprocity: ethical perspectives in encounters with patients in psychiatric in-patient care. BMC medical ethics. 2013;14(1):1-8.
Carlsson C, Nilbert M, Nilsson K. Patients' involvement in improving cancer care: experiences in three years of collaboration between members of patient associations and health care professionals. Patient education and counseling. 2006;61(1):65-71.
Tabrizi J, Wilson A, O'Rourke P (2010). 'Customer quality and type 2 diabetes from the patients'
perspective: a cross-sectional study'. Journal of Research in Health Sciences, vol 10, no 2, pp 69–76.
Fowles JB, Terry P, Xi M, Hibbard J, Bloom CT, Harvey L (2009). 'Measuring self-management of
patients' and employees' health: further validation of the Patient Activation Measure (PAM) based on
its relation to employee characteristics'. Patient Education and Counseling, vol 77, no 1, pp 116–22.
Salyers MP, Matthias MS, Spann CL, Lydick JM, Rollins AL, Frankel RM (2009). 'The role of patient
activation in psychiatric visits'. Psychiatric Services, vol 60, no 11, pp 1535–9
Skolasky RL, Mackenzie EJ, Wegener ST, Riley LH (2008). 'Patient activation and adherence to
physical therapy in persons undergoing spine surgery'. Spine, vol 33, no 21, e784–91
Marshall R, Beach MC, Saha S, Mori T, Loveless MO, Hibbard JH, Cohn JA, Sharp VL, Korthuis PT (2013). 'Patient activation and improved outcomes in HIV-infected patients'. Journal of General
Internal Medicine, vol 28, no 5, pp 668–74
Rogvi S, Tapager I, Almdal TP, Schiøtz ML, Willaing I (2012). 'Patient factors and glycaemic control– associations and explanatory power'. Diabetic Medicine, vol 29, no 10, e382–9
Catalan J, Brener N, Andrews H, Day A, Cullum S, Hooker M, et al. Whose health is it? Views about decision-making and information-seeking from people with HIV infection and their professional carers. AIDS care. 1994;6(3):349-56.
Benbassat J, Pilpel D, Tidhar M. Patients' preferences for participation in clinical decision making: a review of published surveys. Behavioral medicine. 1998;24(2):81-8.
Asghari F, Mirzazadeh A, Fotouhi A. Patients' preferences for receiving clinical information and participating in decision-making in Iran. Journal of medical ethics. 2008;34(5):348-52.
Shahrzadi L, Okhovati M. Health Information Prescribing; the Position of Medical Librarians and Informants in Informed Patient Involvement in the Treatment Process (Letter to Editor). HEALTH INFORMATION MANAGEMENT,[online]. 2020;16(6):70.
Nasiri R, Ranjkesh F, Olfati F, Mafi M. Effect of Individual Counseling on the Participation Rate of Pregnant Mothers in Decision Making on the Treatment Process: Clinical Trial. Journal of Education and Community Health. 2019;6(2):119-25.
Abbasi M, Dehghani M, Jafari H, Behtash H, Shams J, Panaghi L. Comparing Two Chronic Low Back Pain Intervention Models: Spouse-Assisted vs. Patients-Oriented. J Fam Res. 2012;8(30):191-211.
Schouten B, Eijkman M, Hoogstraten J. Information and participation preferences of dental patients. Journal of dental research. 2004;83(12):961-5.
Alden DL, Friend J, Lee PY, et al. Who Decides: Me or We? Family Involvement in Medical Decision Making in Eastern and Western Countries. Medical Decision Making. 2018;38(1):14-25.
Colomé À, Rodríguez-Ferreiro J, Tubau E. Too worried to judge: on the role of perceived severity in medical decision-making. Frontiers in Psychology. 2018;9:1906.
Cox K, Britten N, Hooper R, White P. Patients' involvement in decisions about medicines: GPs' perceptions of their preferences. British Journal of General Practice. 2007;57(543):777-84.
Perkins HS, Hazuda HP, Cortez JD. Advance care planning: does patient gender make a difference? The American journal of the medical sciences. 2004;327(1):25-32.
Perkins HS, Freed AA, Cortez JD, Hazuda HP. Patient-centered Involvement in Decision-Making. Medical Care. 2019;57(7):521-7.
Murray E, Pollack L, White M, Lo B. Clinical decision-making: Patients' preferences and experiences. Patient education and counseling. 2007;65(2):189-96.
Coblijn UK, Lagarde SM, de Raaff CA, van Wagensveld BA, Smets EM. Patients' preferences for information in bariatric surgery. Surgery for Obesity and Related Diseases. 2018;14(5):665-73.
Ellis EM, Varner A. Unpacking cancer patients' preferences for information about their care. Journal of psychosocial oncology. 2018;36(1):1-18.
Rutten LJF, Arora NK, Bakos AD, Aziz N, Rowland J. Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient education and counseling. 2005;57(3):250-61.
Matsuyama RK, Wilson-Genderson M, Kuhn L, Moghanaki D, Vachhani H, Paasche-Orlow M. Education level, not health literacy, associated with information needs for patients with cancer. Patient education and counseling. 2011;85(3):e229-e36.
Lamore K, Montalescot L, Untas A. Treatment decision-making in chronic diseases: what are the family members' roles, needs and attitudes? A systematic review. Patient education and counseling. 2017;100(12):2172-81.
Eliacin J, Salyers MP, Kukla M, Matthias MS. Factors influencing patients' preferences and perceived involvement in shared decision-making in mental health care. Journal of Mental Health. 2015;24(1):24-8.
Birkeland S, Bismark M, Barry MJ, Möller S. Is greater patient involvement associated with higher satisfaction? experimental evidence from a vignette survey. BMJ Quality & Safety. 2022;31(2):86-93.
Farsi Nejad M. Bazmi sh. Teimouri B. Resane S. Comparison of patient satisfaction from patients’ right charter in public and private hospitals in Tehran. Medical Ethics[Internet]. 2012;6(21):99-112. Available from: https://sid.ir/paper/195627/en
Seyedi M, Heydari A, Khoramirad A. comparative study of patient satisfaction, physical space and medical equipment between governmental and private hospitals. IJN. 2009; 22(59), 42-50.
Sharma RK, Hughes MT, Nolan MT, Tudor C, Kub J, Terry PB, et al. Family understanding of seriously-ill patient preferences for family involvement in healthcare decision making. Journal of general internal medicine. 2011;26(8):881-6.
| Files | ||
| Issue | Vol 17 (2024) | |
| Section | Original Article(s) | |
| Keywords | ||
| Patient rights; Clinical decision making; Patient access to records. | ||
| Rights and permissions | |
|
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |
